Lupus Log 1

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Lupus Log 1

Uploaded by: willowmagic131
Video Description:
Lupus is a chronic autoimmune disease. It can cause inflamation in the joints, rashes, fatigue, some flu-like symptoms, and multipe other organ and blood problems. It can affect any part of the body and is highly individualized, so no two cases are ever exactly alike. I decided that there needs to be more personal SLE experiences up, so I've started my own video journal about my experience with Lupus. Any comments, or if anyone wishes to chat, my AIM and YIM is MonkeyPantyhose. If I'm on, I'm open for chatting. :)

Tags for this video: blog blood illness Lupus SLE

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My name is Steve:I ... ( 10 months ago by Hurtzdoughnut)

My name is Steve:I was diagnose with lupus at 40.I'm now 44 and on full disability and I've had 3 heart attacks(1st at 32)with 6 stints in my cornary arteries,on countless drugs. I'm not even close to the same person I use to be.I'm in pain most of the time. Chest,rib,hands,feet,neck,Sholders,hips, pelvis,all my tendons.Unbelievable fatigue!!! I live with fear that I could killover at any moment.Divorce from my wife and to top it all off I'm Incredibly poor. It really unfair and shitty.

This was a good ... ( 10 months ago by Penlady5)

This was a good start. I wish you would do more, so others with lupus don't feel so alone and like such aliens. God bless!
Penlady

Lupus is so strange ... ( 9 months ago by yippittydoda)

Lupus is so strange. I am having a hard time with it. I feel so tired all the time, and my neck hurts alot. You are a very brave woman. Let's pray for the cure.

Oh Thank you for ... ( 9 months ago by Cre8iveCrafter)

Oh Thank you for posting this!
It took about 14 months of SERIOUS looking by my wonderful doctor (who was reading until wee hours of the morning so many nights) to find out I had lupus. I was diagnosed with Lupus SLE, Sjogrens, RA (and a few other fun things that I got with the "Fabulous Package Deal") in 1998 at age 27. My platelets were about 58 at the time. I had never even HEARD of lupus before that.
...

...2 of 2 posts... ... ( 9 months ago by Cre8iveCrafter)

...2 of 2 posts...
It took me about 4 years before I "truly" came to accept it.
My lifeline has been that I have found new things that I CAN do. I may not be able to live the original dreams that I had planned for my life, but I have dreamed NEW DREAMS now.... And I am happy!
There is life with Lupus and you are going to be one of the success stories! I LOVE your sense of humor and look forward to updates from you!
Please PLease PLEASE keep posting!!
{HUGS}

Thank you SO much ... ( 9 months ago by poliveri)

Thank you SO much for posting this. You are VERY brave. I have lupus and was diagnosed almost a year ago. I'm 20 years old and I don't have enough courage to talk about it so freely or do the things you're doing. So thank you, for doing what SO many people with lupus can't.. and getting it out there. My aim is: LiLDaniRoxDaMic. IM me anytime. You are great. Thanks so much.
-Dani

I am very sorry ... ( 9 months ago by wackywitch70)

I am very sorry that you have to go thru Lupus as a child. I was diagnosed with Lupus on 10-28-2005. I know what you are going thru. Your poor parents. Please contact me if you ever want to talk about Lupus. I have joined a support group where I live that helps. take care Angie

my dear! dont ever ... ( 8 months ago by MASIALEE)

my dear! dont ever give up ....
on your faith . i dont know if you belive in god . but i wanna just let you know that please keep the faith and know that god has a bigger and better plan then we have for ourself . and with his stripes we are heal
my dear never give up keep a good positive addtitude and i aslo wanted to share a natural supplament in the market called goji juice its very benefical for illments

hi wow i didnt know ... ( 7 months ago by merfmoo)

hi wow i didnt know youtube had this sort of stuff Im 18 now but iv had SLE lupus since i was 11yrs but the docs sai iv prob had it since i was 3 i just wanst dignosed till i was 11 i take all those lovley meds including the dreaded prednisone but props to this vid ill try an dmake a vid response later i actually have just had a bad flare of costochondrtis has ne one had this with there lupus? but great for doign this keep it up! =)

I have had lupus ... ( 7 months ago by AceyMorfiend)

I have had lupus sense i was 14 years old. im 20 now :// i feel ya.

You are so brave to ... ( 7 months ago by glozell1)

You are so brave to share your story... will you please take the time to look at Lisa's Lupus story... Lisa, Life Love and Lups on You Tube... Thanks for sharing and spreading the word...
GloZell

Thank you so much ... ( 6 months ago by MoJoy14)

Thank you so much for sharing.
You are such a courageous woman.
Even though i'm "undiagnosed", you gave me that extra boost of happiness and "it will be ok" tonight.
God bless you, and thanks.
:]
Melissa

Hi brave girl. I'm ... ( 6 months ago by rogerscoco)

Hi brave girl. I'm 55 years old now and have had lupus since I was 20 so practically a lifetime. I was not expected to live beyond 30 but here I am. It's a very long and bumpy road but it's still worth the ride. A cure may be found in your lifetime - I think stem cells are our best option. Probably too far ahead for me but definitely not for you. Get a top specialist you can trust and rely on. That show House makes me laugh but it has brought Lupus into the open. All the best.

hi my name is ruby ... ( 6 months ago by BAMAHAIR)

hi my name is ruby and i was diagnosed with lupus 8 years ago. sometimes im in a lot of pain from the lupus . . the meds that i was given makes me sick so now when im hurting i try to deal wit it the best i can. was getting shots in my feet but they caus my feet to turn white so i had to stop taking them. . just found out last year that it was the reason i was having so many terrible headaches. i have been on a heart monitor because of the lupus. dont ever give up . . god bless you all.

Thanks for the ... ( 6 months ago by 3rdworld)

Thanks for the upload, my bestfriend haves Lupus and i'm just trying to learn as much as I can about it to undertsand what shes going through. I learned alot from your first post and I hope u keep on posting.

Thank you for your ... ( 6 months ago by Carovance)

Thank you for your video. I was diagnosed with lupus (official diagnosis) in 2006. I've battled it since 1989. I have APS and had a heart attack in 1989. I now take Methotrexate, Coumadin, Plauqinil, and all the other Lupie drugs. Please keep posting. You are so brave. I hope we see a cure in your lifetime!

pray to Jesus i ... ( 5 months ago by kiddynamite23)

pray to Jesus i dont know what plan God has for you but in the kingdom things like this dont exist

You are so right! ... ( 3 months ago by babble2leeza)

You are so right! If I don't laugh I want to scream! I have Lupus, Relapsing Polychondritis, asthma, fibromyelgia and sleep apnea. Self motivation has also helped me to make it thru the flare ups. Keep blogging and enjoy the blessing that you do have.

Just hang in there. ... ( 2 months ago by joyelth)

Just hang in there. God can heal you. I am trusting God to heal me too. Please keep posting videos like this because it helps people like me.

you got a good ... ( 1 month ago by darryl349)

you got a good heart :)

Wow darling, you ... ( 1 month ago by KOMBUCHABABY)

Wow darling, you are so articulate and wise. Best wishes.

u r brave and ... ( 1 week ago by montoxic13)

u r brave and awesome! : )

Hi! I am in the ... ( 6 days ago by Jasphiel)

Hi! I am in the process of being diagnosed with lupus but my doctors are not sure what is wrong. I am 26 years old and have not been feeling well for a year, I too had platelet problems and had an ana, but my ana was neg. I've developed low grade fevers and mouth ulcers very recently and have been referred to a rhuemie for a diagnosis, I've been diagnosed with undifferenated tissue disease-but I know how it feels to feel bad and to not know what is wrong. Hang in there and thank you for the vid

Bless your heart, ... ( 2 days ago by navet85)

Bless your heart, thank you for sharing your video. I am mommy to three chidren and have Lupus I did not know i had it until i lost my little girl at five months. I hate this disease seeing your video makes me a stronger person. thank you for the video.

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